We have gotten this question before and I'm sure that we'll really get it now. The natural reaction to Matt's diagnosis is "Why didn't the folks at Ochsner find this?".
I can't answer this question and I'm not sure if anybody else can.
It seems to us that they should have found it. It took the folks here at JH less than 2 weeks and they didn't use anything more sophisticated than an MRI to find the tumor. Of course neurosurgery was needed to get the lesion out in order to have it analyzed. Being here at JH allowed one of the best neurosurgeons in the world to remove the tumor.
It seems to us that the Ochsner neurologists gave up on Matt's case during the most recent 3 weeks when he was there. They may have lost their curiosity about what was causing his problems or they may have been upset with us for not going along with the brain biopsy that they wanted to do. It's possible that they may have diagnosed this correctly if they had done the biopsy but it is also true that the JH folks found the tumor with just MRI.
We do want to say that Matt got great care from some parts of the Ochsner system, especially the great nurses on 8 West, Matt's speech therapist, Charlotte and our primary care doctor, Dr. Jones.
All of this is now water under the bridge. It does us (and all of you) no good to get upset about what Ochsner should have done. We need to direct all of our energy toward the future and helping Matt get better. We have decided to look forward, not backwards and my recommendation is that all of you should also (I hope that doesn't come across as too preachy, it's not meant to).
I do request that you please refrain from bringing the subject up when you talk to us or write e-mails. It will be very hard to let this heal if it keeps getting raised again and again.
Thanks once again for all of your prayers and support. We need it and appreciate it. Even something that seems small like commenting on this blog really encourages us. We read all of the blog comments and they make us feel like there are a lot of people out there who are in this with us so keep it up.
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Just want you and Noel to know that I am praying for you all! I have been getting updates from Mom, but am really glad to find out about your blog. Matt is in my thoughts and prayers every single day!
ReplyDeleteLove,
Joelle
praying for you guys. sending love, prayers, and hugs. And standing on God's Word for total healing. believing with you that God's Word is our final authority. What seems impossible to man IS POSSIBLE WITH GOD! Nothing is too difficult for Him. God bless you as we pray for you today and stand with you in prayer during this time! He gives strength to the weary. You guys are amazing parents! Please give Matt a hug and kiss from Ms. Denise all the way from Kenner!!!!!! (and love from the rest of the Marcons too) p.s. the next time friends try to tell you things you don't want to hear, just hang up and blame it on a bad connection! :)
ReplyDeleteJust wanted you to know that Scott & I are praying for you guys. I keep thinking about that worship song that says "We will stand back and watch you move." You are in the best hands possible.. God's. You are in our thoughts.
ReplyDeleteLove ....Scott & Donna Apperson
Thanks for the blog & keeping us posted. It really helps me know how to pray for you guys. By the way....is the tumor malignant or are you still waiting the final pathology report?
It is what is ----& PRAISE GOD YOU ARE WHERE YOU ARE !!!!!
ReplyDeleteLOVE,
TINA
I truly believe that everything happens for a reason. We may never know the reason but we must accept it. I also believe in the power of prayer. Matt is where he needs to be to heal his body. My prayers are with you all. Matt is in so many prayer groups, not just locally, but in other states and even in Hungary!
ReplyDeleteKathy LaFitte
We want you to know that our family is continuing to keep Matt and both of you in our prayers. Ever since we found out something was wrong with Matt we have bathed him and lifted him up in prayer. We will continue to pray. We also believe in the power of prayer and that all things are possible with God.
ReplyDeletePraying and believing in Mississippi,
Dave and Linda DeRouen, Aunt Marguerite, Monica & Brandon Morel
Just a little note of support and encouragement. I just couldn't let another day go by without telling ya'll about Robby's prayer on Sat. night. "Dear God, Please help Matthew get better. God, just show him what you can do! Please help the doctors make him all better. Amen". Rachel and I were so taken back with the humble sincerity. It was so PRECIOUS! Ya'll are in our thoughts and constant prayers.
ReplyDeleteWe love ya'll and God does too!!!
Love, Rachel, Robby and Pam Bertucci
We love you all. Thanks for encouraging us!!
ReplyDeleteThe Moskau Family