Doctors came late today and Dr Cohen came after the rest of the docs left. I got to talk to him about Matt's case and plans for moving him back to N.O.:
Matt's Progress
Dr. Cohen is pleased with Matt's progress so far. He told me that he has noticed some small physical signs of improvement such as his handwriting improving. He also corrected my mistaken impression of the tumor. He told me that it is more of a coating that is on the cranial nerves rather than a lump that is pressing on the nerves. He confirmed what we've thought all along that the chemo will eliminate the cancer but then we'll have to see how fast the nerves heal. That's where prayer comes in so don't give up now.
Plans for the Future
Dr. Cohen talked to Dr. Singleton from Children's Hospital last week at a conference. Dr. Singleton trained at Hopkins and right now it looks like she'll be treating Matt when he gets home if all goes well. Children's Hospital also has a rehab unit which Matt is going to need for a while to get his strength back. I am happy that this seems to be coming into place.
Matt and I had a long "conversation" about all of this using our white board. He is very interested in what's going on and wants to be kept informed on his progress and the plans for the future.
One tidbit that I've noticed about Matt. Whenever the doctors come in to talk to us, he makes sure to shake their hands. I think that it is a great gesture on his part.
Matt is coughing up quite a bit of mucus today so please pray for this to subside.
I've come back to the RMD house for dinner and then I'm going back to JH to enjoy some Monday Night Football with Matt.
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We really enjoyed visiting Matt and Noel on Friday. We were very impressed with the staff at JH (we were present during nurse visits, doctors visits and physical therapy) but even moreso with Noel and Matt. It is remarkable to see Matt's attitude and strength during this difficult time. We were amazed at Noel's knowledge of Matt's medical condition and history and how it helps the doctors as they are treating him.
ReplyDeleteIt also is very evident that Matt is supported by so many people who love and pray for him and the family. All of the prayers, cards, letters, visits, gifts, etc. continue to strengthen Matt. We were blessed to be a part of that and can't wait to get you all back home again.
We love you and continue to pray for you.
Rich & Jane